At Saventic Care, we build strong rare disease partnerships with leading organizations and patient associations to guide you through your diagnostic journey.
Saventic Health is a medical technology company developing innovative algorithms that leverage Electronic Health Records and demographic data to support doctors in diagnosing and treating rare diseases.
Based in Poland, the Association of Families with Fabry Disease aims to unite and support patients and their relatives. Its key initiatives focus on improving access to existing therapies and ensuring patients receive timely treatment.
For over 20 years, the Association of Families with Gaucher Disease has supported patients and their close ones in Poland. Its founders were the parents of one of the first patients with Gaucher disease diagnosed in the country.
DNA Institute is a leading institution in continuing education in genetics and genomics. It offers specialized courses and educational content for healthcare professionals, patients, and caregivers. The Institute also partners with patient foundations and families affected by genetic conditions, demonstrating a strong commitment to the rare disease community. Through academic events such as symposia and conferences, DNA Institute promotes awareness and advances the practical application of genetic knowledge in society.
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This Polish educational website approaches hematological proliferative diseases, addressed to doctors and patients. The website presents the latest reports from the specialist press, treatment procedures, events, basic information about diseases and their course and treatment options.
The FOP Polska Association is an organization that brings together people suffering from FOP, their families and friends working together to spread knowledge about FOP, to help with diagnosis and finding a path to the correct diagnosis.
OnlineZdrowie.pl is a website promoting a healthy lifestyle, publishing content created in accordance with EBM (Evidence Based Medicine). The mission of the website is to educate society in the field of taking care of health in accordance with the recommendations of doctors and scientists. It places particular emphasis on combating information that is potentially harmful to health and life, promoted, among others, as alternative methods of treatment.
The Polish Association of My Kidneys (OSMN) brings together people with kidney diseases, at various stages of the disease development, from all over Poland. It supports patients with Chronic Kidney Disease (CKD) and their loved ones, helps them cope with the adversities that the need for conservative treatment or renal replacement therapy brings. It serves them with kind words, advice and help in finding solutions to their health problems. It promotes preventive kidney examinations and the idea of transplantation among the public as the best method of saving the lives of seriously ill people. It offers knowledge, support and inspiration on the subject of life with kidney disease.
The Hematooncological Association was established in March 2019 in response to the needs of patients struggling with hematooncological diseases and their loved ones. In fact, the association has been operating and supporting patients since October 2015 as a support group for patients with myeloproliferative neoplasms and myelofibrosis syndrome. Thanks to joint activities, discussions and meetings with decision-makers, patients have access to modern therapies. All implemented projects are aimed at patients and their loved ones - education and support are the motto of the Association's activities.
The One in a Million Association was established in 2021 on the initiative of people affected by the ultra-rare disease, Paroxysmal Nocturnal Hemoglobinuria (PNH). It works for the good of patients with PNH, offering emotional and informational support and representing them in contacts with public and medical institutions. The Association strives to improve the process of PNH diagnostics and provide patients with access to modern drug therapies, cooperating with experts in the field of hematology. Their goal is to improve the quality of life of all people affected by this disease.
The HAE Association is a non-profit patient organization dedicated to supporting individuals with HAE (Hereditary Angioedema). The website provides comprehensive information about this rare genetic condition, its symptoms, and available treatment options. The HAE Association promotes exchange among patients and their families to share experiences and coping strategies. Its mission is to raise awareness of Hereditary Angioedema, support research, and improve the quality of life for those affected.
L’objectif de Badaniakliniczne.pl est de soutenir les patients en fournissant des informations fiables, accessibles et faciles à comprendre sur les essais cliniques. Ils visent à éliminer les obstacles qui limitent l’accès des patients aux opportunités de participation à la recherche, tout en favorisant les liens entre patients, centres de recherche et sponsors. En proposant une plateforme fondée sur des technologies innovantes et axée sur les besoins réels des patients, ils transforment la manière dont les essais cliniques sont recherchés et partagés à travers l’Europe.
GSK (GlaxoSmithKline) est une entreprise biopharmaceutique mondiale axée sur l’union de la science, de la technologie et des talents pour devancer la maladie. L’entreprise recherche, développe et fabrique des vaccins innovants et des médicaments spécialisés dans des domaines tels que les maladies infectieuses, le VIH, l’oncologie et l’immunologie. Avec une forte présence mondiale, GSK vise à améliorer les résultats de santé et à rendre ses thérapies accessibles à des millions de personnes dans le monde. De plus, GSK est notre sponsor d’un projet dédié à l’accélération du diagnostic de maladies rares telles que l’EGPA (granulomatose éosinophilique avec polyangiite) et le syndrome hyperéosinophilique (HES).
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