Our articles

Your guide to rare diseases

Whether you’re a patient, caregiver, or healthcare professional, our articles offer valuable insights on research, patient associations, upcoming events, and practical tips for living with rare diseases.

2025-04-11

Why is patient medical documentation important for diagnosis?

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Patient lying in a hospital bed
2025-03-10

Symptoms of Rare Diseases: Warning Signs That Should Not Be Ignored

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2025-03-06

Why Do Women Take Longer to Receive a Diagnosis?

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A young girl in a hospital, waiting for her medical appointment
2025-03-06

April 29: Undiagnosed Day

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